I’ve been terribly remiss keeping this blog updated. That’s because I stay very busy editing and writing for HealthNewsReview.org, where I’m the deputy managing editor, while also trying to be a good parent, spouse and citizen of Austin in my downtime. Blogging for fun has taken a backseat to life, in other words.
But yesterday I wrote a HealthNewsReview.org blog post about a new ALS drug (Radicava) that I wanted to share with my readers (if I have any left after so much silence on my end):
The post touches upon so many problems with American healthcare these days, and how patients suffer as a result. Ineffective, expensive drugs are becoming commonplace. The last line of defense against a crumbling system are journalists, who in this case didn’t uncover the truth about Radicava.
For the post, I interviewed ALS patient Chris Simon, who manages to keep a good sense of humor and a sunny disposition while struggling with a relentless and vicious disease. It is for patients like him that I wrote the post. I absolutely hated that I had to deliver such bad news. But as I say in the post, ALS patients deserve honesty, not hype.